A family of four received the devastating news that “Childhood Alzheimers” was going to take their two daughters. The disease is extremely rare, with 500 cases diagnosed universally, but the fight to save these children is well underway. The condition, known as NPC, kills most children before the age of 10 without intervention, and with treatment some children have even made it to adulthood. No one on record thus far has made it over 40. This family hopes to save their children for the genetic disease altogether. Parents Pam and Chris have been fighting hard to save their daughters, seven year old Belle and three year old Abby. The treatments so far are designed to stall symptoms from progressing and to keep new symptoms from presenting as well. The couple started the Firefly Fund, a non-profit that works with the world’s leading doctors and experts for NPC1 as well as other NPC1 families to support research for NPC1 therapies.